Is voluntary research dangerous?
It is recommended that you speak to your consultant, or a trusted medical professional before signing up for any trial commitment. The trial should also meet the highest moral, ethical and clinical standards. You should also check that the trial should be conducted under the oversight of the appropriate national and local regulatory authorities. These include the National Institute For Health and Care Research (UK) the Food and Drug Administration (FDA) in the United States, the European Medicines Agency (EMA), or Health Canada (HC).
Do I have to pay to take part in research?
You should not be asked to pay to be part of a clinical trial. Also, depending upon the trial itself, you may be able to receive reimbursement for your travel costs.
What happens if I start a trial but I am unable to complete it?
Each trial will be different in terms of your time, and commitment. You should be made aware of these prior to signing up to the trial, and factor these considerations into your decision. Conducting a clinical trial is competitive, and expensive for the research facility, so it’s important you understand the commitment you are making to the trial, and the team.
Why should I sign up to a clinical trial?
Clinical trials play a vital role in helping test and develop promising research in order to create new treatments. New research developing different treatment pathways for spinal cord injury. By taking part in a regulated clinical trial you could help develop new treatments which will benefit you, and the wider spinal-cord injured community.
How do I sign up for a trial?
Taking an active role in developing new research is one way that you can play your part in helping develop a cure for paralysis.
However, please be aware that although there are new treatments and trials taking place around the world, it is vitally important that you check to ensure any medical procedure meets the highest care standards and that you have spoken to your spinal consultant or an informed medical professional before considering any procedure.
Please visit our Playing Your Part webpage for list of useful signups sites and resources: